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individuals with Gaucher Disease
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Who we are

The National Gaucher Foundation (NGF), a non-profit organization established in 1984, has funded millions of dollars toward the cause, treatments and cure for Gaucher Disease. We are an objective, independent voice of the Gaucher community, dedicated to providing leadership, outreach and innovative thinking. We offer a wide range of programs and resources to meet the ever-increasing needs of individuals and families affected by this disease.

What we do

The NGF funds research, grants financial assistance, promotes education and awareness, supports legislation and provides vital programs. Through our National Gaucher Care Foundation, the CARE Program and the Care+Plus Program, we extend critical financial assistance to individuals with Gaucher Disease. Supporting medical and lay-community outreach, we host live Webinars, national conferences and patient forums. Additionally, our national and regional marketing programs promote ongoing awareness of Gaucher disease.

For more information, contact ngf@gaucherdisease.org or call
800-504-3189

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Buy Emily's Journey DVD

National Gaucher Foundation has received the coveted four-star rating from Charity Navigator for 2007 National Gaucher Foundation is a member of Independent Charities Of America Jewish Genetic Disease Consortium Member

 

What's New?

New Event Photos Added!

2010 Gaucher Conference

NGF members get $35 discount

• Gaucher Walk and 5K Run

- 2nd Annual Isabella “Izzy” McFalls Walk and 5K Run, October 16, 2010

• Gaucher disease on TV

- Healthy Body, Healthy Mind
Episode 1603

Gaucher disease: a Mysterious Genetic Disorder. This program explores the history of this condition and features patients who talk about their struggles with Gaucher Disease. Also highlighted are the new treatments that are offering hope for people living with this mysterious condition

• Genzyme

• Cerezyme
- 7/21/10 Expectations for Supply
- 7/8/10 Supply of Cerezyme Update
- 7/8/10 Cerezyme Emergency Access Program

• Eliglustat tartrate
- Genzyme enrolling patients in the largest Gaucher clinical program to date

• Protalix BioTherapeutics

- 7/21/10 Protalix Receives PDUFA Date for taliglucerase alfa

• Shire

- 7/1/10 Continuous Improvements in Bone Mineral Density for VPRIV®

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National Gaucher Foundation

2227 Idlewood Road, Suite 6
Tucker, GA 30084
800-504-3189