Resources for Patients and Families

We have gathered useful resources for patients with Gaucher disease and their families to provide additional support, information and inspiration.

The National Gaucher Foundation (NGF) website offers information about:

• Resources to build a comprehensive Care team
• Connecting with others who have Gaucher disease
• Financial support to help cover the cost of treatment
• Rare disease advocacy organizations
• Resources related to prenatal screening and genetic counseling for Gaucher disease.

We also provide resources where you can learn about:

• Living with Gaucher Disease
• Optimizing your Health
• Prevail Therapeutic PROCEED Clinical Study: Now open to patient enrollment
• Lysosomal Center
• Angel Flight NE