Living With Gaucher Disease Archives - Page 4 of 4

Blog / Living With Gaucher Disease

Meet Our Ambassadors

In 2018, the National Gaucher Foundation announced its first Ambassador... Read more

Blog / Insurance

Drug Pricing, a Complex Issue Affecting the Rare Disease Community

Orphan drugs are expensive, and recent changes to the Orphan Drug Act may up the price even more. Find out how to take action and make your voice heard.

Blog / About Gaucher Disease

[Podcast] Gaucher Disease and U.S. Health Insurance

This month’s premier podcast is focused on the basics of... Read more

Blog / Living With Gaucher Disease

Psychosocial Impacts of Living with Gaucher Disease

Doctors and scientists have already made tremendous progress in the... Read more

Blog / Living With Gaucher Disease

[Video] Meet Nate: Gaucher Disease Patient Journey

For 10 years, Nate struggled to receive a diagnosis for his excruciating bone pain. He was finally diagnosed with Gaucher disease and made a miraculous recovery.